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Dawai
12-17-2005, 10:48 AM
I'm coming up on the two year mark since Iodine-radiation treatment to kill my thyroid.

Going nearly cold and catatonic for a month, I started taking iron, zinc, vitamin E and Geritol.
I feel better, but can't sleep now.

Sleeping pills have quit working. They made me groggy and useless for the next day anyways.

I have a appointment with a specialist next month on the 10th. Still can't work or enjoy life.

Anyone else? I emailed someone else who is a regular on this board, but can't remember who it was..

mochinist
12-17-2005, 11:01 AM
I was originally hyperthyroid, the Doctor gave me some medicine and it made me hypothyroid instead. So I have been on various doses of thyroxin for the past two years to try and keep my levels as close to normal as possible. To tell you the truth I prefered it when I was hypr, losing weight was easy then, now that I am hypo, I have to really watch my diet and exercise alot and still I have a little gut.

oldmx
12-17-2005, 11:06 AM
David, my wife has hypo thyroidism. Made her super fatigued and depressed. It was tough for me to watch a very active person become like that. But now we had it figured out, she went and had 2/3 of it removed and put on meds. she starting to come back to the person I use to know. Get it diagnosised and get on the proper meds. it will make a huge difference in your life. Joe.

Frank Ford
12-17-2005, 11:35 AM
Right - it' vital to keep on top of the thyroid meds. And, it can take a while to get the dosage stabilized. After my thyroidectomy (malignant tumor) I got the radioactive iodine, too. The lab tech lifted the cup out of a lead box with long tongs and handed it to me saying, "Here, drink this, it's perfectly safe."

It took a number of visits over the next year or so to straighten out my dosage, and I went through some high and low points along the way - you bet.

I've just passed the 35 year mark on thyroid meds, and I still get my level checked every year or so. . .

operose
12-17-2005, 12:06 PM
my dad is either hyper/hypo.. and his identical twin brother is the other.

Milacron of PM
12-17-2005, 12:09 PM
<font face="Verdana, Arial" size="2">David, my wife has hypo thyroidism. Made her super fatigued and depressed. It was tough for me to watch a very active person become like that. But now we had it figured out, she went and had 2/3 of it removed and put on meds.</font> David said he has hyper thyroidism...which is the opposite of hypo thyroidism. Re the 2/3 removed aspect, I'm curious why anyone would have part of their tyroid removed when it's not producing *enough* hormone, as intuitively it would seem they need *more* thyroid gland, not less. Or was it that it was swollen...like a goiter situation, and needed to be reduced for cosmetic reasons ?

Dawai
12-17-2005, 12:49 PM
Yeah, Hyper all my life. Going at breakneck speeds at every little thing. Broken 100+bones *since the ice Last friday it may be more.. Got a swollen ankle and knee..

I preferred the high energy level of Hyper instead of comatose hypo.

Always been a bundle of springy vibrating can't sit still muscle, now going downhill in a landslide. Not real happy with the doctors changes so far. BUT, I was hyper, run wide open then fall over out of fuel.

Vitamins helped more than anything in the past year. Still something missing.

Al Messer
12-17-2005, 01:55 PM
David, my wife had to have her Thyroid Gland "Shot" with that radioactive bullet back in about 1988. She takes a regular dose of "Synthroid" and live a normal active life. Keep plugging away and it will all come together for you. Merry Christmas and best wishes for the New Year.

Your Old Dog
12-17-2005, 02:27 PM
David, there's a couple of good forums out there that I found helpful. Couple things to keep in mind.

Most doctors are afraid to overmedicate you on thyroid meds as they say it wears the body down faster. My doctor says that's way out of proportion and I believe him. He goosed my meds up until I started having trouble sleeping and then backed it down until my only issue was over-heating to easily. (I was able to snowblow a buffalo driveway in a t-shirt) We've since backed that down and I'm doing much better. You won't live long enough to have most doctors get your meds right. They all go for the figures that work for normal healthy people. Read on a forum from a woman who worked in a lab. She said most hypo-thyroid patients reported feeling better when their levels were slightly elevated from those of normal people.

You probably know the med is taken first thing in the morning when it is absorbed the best with water. Don't have any caffiene for 30 minutes or better. Avoid almonds as they work against the meds. Realize that this med doesn't work right away. It takes weeks before you see the result of a minor change in meds. That's why you instead of taking 100 mg of med every day you can break one in half and and take part of it with your regular dose every 3 days or so and feel a slight perk up after 2 weeks or so. My doctor told me to feel free to skip or take extra as I see fit and to keep track of it. Then I add up what I've taken for the week and he divides it by 7 for any script changes. It ain't a good time but when I see what some other folks are dealling with I'm grateful I have something that is half-way-dealable.

My sister had what was called thyroid storms and they had to remove hers. My sisters are all nurses and they were surprised the havoc it caused her. Usually, just before a hypo persons thyroid takes it's last gasp, there is a thyroid storm where it really kicks out the t's . I remember walking one night with the CD player and I felt like I could have gone on forever and not tired !!! When it finally gave out things got real sluggish. (SPEAKING OF SLUGGISH lol: If you ain't on fiber get on it post haste and know the joy of taking a normal dump http://bbs.homeshopmachinist.net//biggrin.gif Thyroid affects how you go to the bathroom. I take 1 heaping teaspoon of metamucil every evening at 7:30pm and sink a 3 footer every morning with no effort LOL (Does this board cover some crap or what !!)

good luck, feel free to email me anytime I can help. Not everything I got to say is for public consumption despite how this just read !

Ray.....

[This message has been edited by Your Old Dog (edited 12-17-2005).]

Your Old Dog
12-17-2005, 02:35 PM
<font face="Verdana, Arial" size="2">Originally posted by D. Thomas:

David, my wife has hypo thyroidism. Made her super fatigued and depressed. It was tough for me to watch a very active person become like that. But now we had it figured out, she went and had 2/3 of it removed and put on meds.</font> David said he has hyper thyroidism...which is the opposite of hypo thyroidism. Re the 2/3 removed aspect, I'm curious why anyone would have part of their tyroid removed when it's not producing *enough* hormone, as intuitively it would seem they need *more* thyroid gland, not less. Or was it that it was swollen...like a goiter situation, and needed to be reduced for cosmetic reasons ?

Either Graves of Hashimoto's desease. Occasionally for cancer of the thyroid.

Dawai
12-17-2005, 04:42 PM
I had the majority of my thyroid cut out about 25 years ago, like a lizards tail it growed back

Yankee1
12-17-2005, 07:57 PM
Hello David,
My wife had the same problem with trouble getting to sleep. She takes thyroid medicine too. Vitamin B Complex helped her sleep.
Chuck

oldmx
12-17-2005, 08:10 PM
Old Dog you are right she had Hashimoto's desease. I thought they just take it all but the Dr. said they just take what is needed and no more. Joe.

ScottS
12-17-2005, 11:41 PM
My wife has this also. We have been married for 22 years now been through what you are talking about many times. She work for a school and when see is off for the summer she has to maintain somewhat of the same schedule or she goes a little in the other direction. Get to a specialist and stick with them. Have patience and it will take a little time to get leveled out.

SHOPA$$
12-19-2005, 11:24 PM
This is my first post. Not to try to hijack the thread, but I also went from Hyper- to Hypo-. It is difficult for others to understand if they have no experince with this. It has not always been easy, and like yourself this is not one of the "better" times. Too many changes, so much unresolved right now for me, just need to diesel on in the slow lane. Sorry, my post has nothing to do with metal.

------------------
Today I will gladly share my experience and advice, for there no sweeter words than "I told you so."

kap pullen
12-20-2005, 10:26 AM
Doctors found a lump, or something on the thyroid in the nuclear medicine test.

Ultra sound has confirmed it.
Have to go get the thing biopsied in Feb.

Low pulse rate, and higher eye pressure, are supposed to be result of thyroid problems. I have been thru the test mill in the last two months.

As a child, I had radium treatments for the adnoids. This is supposed to increase chances of thyroid problems in later life.

My regular doctor missed this, and a Gastroi... picked up on it while looking for a some stomach pain problem.

If you had those radium treatments, get things checked out.

Merry Christmas

Kap Pullen

debequem
12-20-2005, 10:42 AM
Well, my 18 year old cat has that, but I doubt you could have a meaningful conversation with him. I can't.

We treat it with meds.

From your symptoms it sounds like your thyroid balance is still not right. This is not atypical as far as I know. These things take some dialing in to get the doseage right. You need to continue the regular blood tests to track the hormone levels and the affect of the meds.

Thyroid is a very slow acting hormone, so changes in the levels today take a long time to take effect in your body.

Keep after your doctor and let him know your symptoms and get regular tests to allow him/her to get any supplimental doses dialed in. Make sure you take the meds religiously so he can make the fine adjustments.

Your procedure is supposed to reduce the thyroid output to something closer to normal. Also, your thyroid output may change over time, so what was right as far as treatment goes two years ago may be different today.

Your doctor can help you manage this and you should normalize and have a good quality of life again.

Good luck!



<font face="Verdana, Arial" size="2">Originally posted by David E Cofer:
I'm coming up on the two year mark since Iodine-radiation treatment to kill my thyroid.

Going nearly cold and catatonic for a month, I started taking iron, zinc, vitamin E and Geritol.
I feel better, but can't sleep now.

Sleeping pills have quit working. They made me groggy and useless for the next day anyways.

I have a appointment with a specialist next month on the 10th. Still can't work or enjoy life.

Anyone else? I emailed someone else who is a regular on this board, but can't remember who it was..</font>

Dawai
12-20-2005, 11:07 AM
Doctor throwed her hands up.. She don't know what to do other than prescribe me more tranqulizers.. (party drugs).. I had to move the "pills" from the bathroom to my bedroom to keep the "pill-fer-rers out".. ha ha.. (occasional friends who have dropped by..) I was taking them to relax to go to sleep regular like. Once or twice a week, any more than that and I become immune to them.

The same guys used to drop by when I had a back injury.. Funny, they never bothered the Heavy narcotics.. More than once.. I had some pills then, you'd take one as prescribed, sit on the toilet and forget why you were there.. get up and try to walk off with your drawers around your ankles.. ha ha.. I had a bump on my noggin, and never took another. I don't see how anyone can call "that" fun.

I never have liked drugs, always been hyper. Like the one or two Shamen I knew, I have tried to have a clean spirit and healthy body. I had the thyroid problem show up "again" after working in a nuclear plant. I remember one "hot dose" I got where the Ed beeped till I left. I think once I got a flea up my nose too.(airborne small particle attracted to static). I had a head-indication for about a week in the PCM. Wiping, cleaning, did nothing. Sneezing I think finally dislodged the particle. The Slipper sweepers have done more to help the particle pickup and contamination in a nuclear plant than anything. Things get tracked in and out of hot zones.

When the doctor gave up, I looked on the net for a specialist. One exists in Chattanooga Tn. I have a appointment the 10th.

Vitamins have helped, last week I was useless, a chair ornament. I am not lazy and only am happy when I am busy and constructive. Now, my hands are jittery, my eyes are bugged out.. and my knee is still swollen from falling last Friday.. I am staying off it as much as possible..

This vessel I call my body has been on some rocky shores. Abused, beat up, neglected and hopefully only temporary. As messed up as I am, I am the luckiest man on earth.

You guys stay in touch with my wife for the "tools yard sale" ha ha.

Mcostello
12-20-2005, 09:19 PM
What do you mean sale? We were going to "help
her out" and clean out the place, "just cause Dave was a good guy". http://bbs.homeshopmachinist.net//smile.gif

Your Old Dog
12-21-2005, 09:34 AM
I'm hypo, my sister is hyper. They couldn't control hers so they removed it and now she it treated for hypo. Same meds as me.

While all doctors can treat throid problems, only a good endocronolgist understands that whats normal for a healthy person may be low for a person who has become hypo-throidic. Some doctors treat all patients with only one drug. Some realize their clients need two differant meds to deal with the single issue. I'm not sure what they are but know the treatment exist. If you haven't been digging around on the web you should be. Pay attention to the forums and look for similaritys in what they report and what you have.

Dawai
12-21-2005, 09:40 AM
Yeah, one thing I noticed this morning? My pills have went from green to blue. Usually denoting "WRONG"....

The label is right.. they are supposed to be 1.5's.. Mail order prescription, 3 months at a time.. Damn insurance company.

Dawai
12-21-2005, 10:05 AM
www.thyroid.org/patients/brochures/Hypothyroidism%20_web_booklet.pdf

It says I am screwing up by taking Iron and Calcium tablets. NEVER Take the tablets dry without a drink.. Like I do..

I'm cutting out the vitamins except the geritol. The Zinc is what has kept me from being cold I think.. if I am freezing I will continue it.

SHOPA$$
12-21-2005, 04:25 PM
Have to watch that calcium. LOML changed the OJ I was drinking, it was fortified with calcium. Some interaction, peed the meds out before they where absorbed into the blood. Slowly spiraled down, then crashed like you did(?), have(?), are(?). Kind of like the Grand Old Duke of York song. By the time you realize something is not right it is too late.

------------------
Today I will gladly share my experience and advice, for there no sweeter words than "I told you so."

Your Old Dog
12-21-2005, 08:14 PM
David, you aren't washing down your meds with coffee or pepsi. Caffeene dramatically weakens the med if taken within 30 minutes. I was told to stay off of antacids too and I think they are mostly calcium if I'm not mistaken.

Dawai
12-21-2005, 11:07 PM
YEP, called the pharmacist to check on the strength of the pills vs color. He says not to take the vitamins till midday. The nicacin, the zinc or calcuim would not affect it then.

Take the pill with water, no coffee for 30 minutes, before breakfast. It takes weeks to swing the t-levels to correct. Since I have been messing with it by taking the vitamins and coffee and taking the pills dry, no telling where my blood level is.

Seeing the Encrinologist?? the 10th.

Your Old Dog
12-22-2005, 06:06 AM
Now, one last heads up you won't want to hear !! I was doing it all wrong myself so they kept upping my dose to compensate. Then when the technique was corrected I was left with what turned out to be an overdose! So in the end it took 2 or 3 months to get it regulated.

If you're in the ball park of feeling good you should see some improvement in 2 weeks time if you slightly modify your dose. If I'm too hot I take a pill a day but on Monday and say Thursday I'll take 1/2 a pill. Two weeks later I can feel the effects of not being sweaty all the time.

In my case I know things are about right if I aint sweating all day ad my finger nails aren't crumbling and get a little elsaticity to them. As others have said, your milage may very.

Growing olds a bitch. Had I known then what I know now I would have flamed out on chicken wings and beer http://bbs.homeshopmachinist.net//biggrin.gif

Good luck Dave

[This message has been edited by Your Old Dog (edited 12-22-2005).]

Rustystud
12-22-2005, 09:49 AM
Dave:

Hyperthyroid = Graves disease

It is like having yor gear box in neutral and the gas pedal to the metal. Simple fix is a dose of radioactive iodine 131. Then you will go throught thyroid storm for a couple of months. Then you will begin taking Synthroid or Levetrol. Exwife went through it.

I had Hashimotos disease Hypothyroidism. I take synthroid. I was further diagnosed with bilateral goiters with direrentiated nodules. I have had a bilateral thyroidectomy and have to take synthroid daily.

You need to be seen by a endocrinologist not just a GP or family doctor. When you have one endocrine problem are twice a likely to have another endocrine or autoamune disorder. Have regular blood work done A1c, TSH, T3, T4, as well as your lipids.

Make sure you have a iodine uptake scan and a ultra sound of your thyroid especailly if you have a family history. Papillary carcinoma is a very slow but deadly (thyroid cancer)it is completely treatable in the early stages. The aformentioned test will identify it if it is a problem.

Keep your chin up and join the rest of the aging world.
Rustystud

Dawai
12-22-2005, 10:17 AM
Yeah, mine was nuked. The pill came in a flask that looked to weigh fifteen pounds of shielded materiel. Nurse unscrewed the lid, took tongs and placed it into my hand.

I was told not to hug my child nor sleep with my wife for a time period. I was hyper, now Hypo and taking pills to supplement.

My shop doorway is over a foot deep in leaves, I have not been down there to see my metal babies in a while. (my only way to relax)

On top of all this, my daughter is starting to grow breasts and producing "anti-social to parents" hormones. She has quit doing all schoolwork. Is a genius mentally, but acting like a moron. (drawing pictures instead of schoolwork)

My court custody case I settled for 50/50.. since she would not come on visitation last time, nor this week I guess Nobody is going to honor it. Mention was made to turn it over to the State again. (her state appointed attorney, mine has to be paid for)

If I had it to do over, I'd got neutered at 18, Not just the baby making part either. Enough where the women would have not been interested in long term relationships. I get along with my pitt bulldog the best.

That rascal? He was standing by the door with his rawhide bone, I told him he could not go out with it, he turned, walked three feet dropped it and came back to the door. I really wonder just how many words he understands? More than some kids or women.
He'd die for me if I needed him to. Visitors are terrified, He bites the wire, jumps 5 feet straight up, eight feet sideways flat footed. Ahh I used to be young too.