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View Full Version : OT - Yet Another *#%& Inconvenience



Weston Bye
11-18-2014, 09:16 PM
Here is where it all started:
http://bbs.homeshopmachinist.net/threads/50766-OT-but-important-PC

Turns out it weren't so:
http://bbs.homeshopmachinist.net/threads/51314-Good-News!-They-Got-It-All

The Saga Continues:
http://bbs.homeshopmachinist.net/threads/52536-I-went-back-to-work-this-week

Fast forward to today, went back in for the routine PSA test.......
It went from 0.1 to 0.2 (best score for someone with my lack of equipment is <0.1) Kinda had suspicions that it could go this way when it went from <0.1 to 0.1.
Past the threshold now and now I will be starting radiation 5 days a week for 8 weeks. I will get more details next week when I go for the first consultation.

Side effects are purported to be mild. Proctitis, Urethuritis, Fatigue. We shall see.

too bad. I have been feeling really good lately, too.

Rustybolt
11-18-2014, 10:13 PM
Damn Weston. I'm sorry to hear about it. I'll pray all goes well for you.

The Artful Bodger
11-18-2014, 10:30 PM
Hi Weston, sorry to hear your news.

I had the radiation therapy and side effects were minimal, re tiredness, best to have someone to drive you home each day.

john

TGTool
11-18-2014, 10:35 PM
Weston,

Wishing you well. IIRC somewhere in my prostate cancer self-education I'm recalling a mention that the adrenal glands could also produce PSA so post surgery tests weren't always definitive. If true that only muddies the water but I'm glad you're getting advice that takes a cautious approach and close follow up.

Errol Groff
11-18-2014, 11:37 PM
Weston: The boys, Roy Bear, Eddie Moose and Bob the Dinosaur , send their best wishes for a successful treatment course.

http://neme-s.org/2013/Straw_Hollow_2013/2013-08-10/Section_1/DSC04442.jpg

I, of course, echo their wishes for good results!

Errol Groff

JRouche
11-18-2014, 11:46 PM
Sorry to hear the new news Wes. Prayers from over here. JR

Paul Alciatore
11-19-2014, 02:59 AM
I'm sorry to hear this. I will say a prayer for your complete recovery and ask my wife, Judy, to do so also. I think she has a clearer channel to the big man than I do.

dp
11-19-2014, 03:07 AM
It is profound that you see this as a *#%& inconvenience and not a road block. You're going to do fine with that kind of spirit.

madman
11-19-2014, 06:20 AM
Sending you well wishes for your quick recovery and good health. Mike

A.K. Boomer
11-19-2014, 09:08 AM
It is profound that you see this as a *#%& inconvenience and not a road block. You're going to do fine with that kind of spirit.

That's about was I was going to say. More power to you Wes and hope you get back on track soon and your time will be all your own again...

Steve Middleton
11-19-2014, 09:09 PM
Here is where it all started:
http://bbs.homeshopmachinist.net/threads/50766-OT-but-important-PC

Turns out it weren't so:
http://bbs.homeshopmachinist.net/threads/51314-Good-News!-They-Got-It-All

The Saga Continues:
http://bbs.homeshopmachinist.net/threads/52536-I-went-back-to-work-this-week

Fast forward to today, went back in for the routine PSA test.......
It went from 0.1 to 0.2 (best score for someone with my lack of equipment is <0.1) Kinda had suspicions that it could go this way when it went from <0.1 to 0.1.
Past the threshold now and now I will be starting radiation 5 days a week for 8 weeks. I will get more details next week when I go for the first consultation.

Side effects are purported to be mild. Proctitis, Urethuritis, Fatigue. We shall see.

too bad. I have been feeling really good lately, too.

I'm alarmed. I had prostate surgery 2004. Last 3 or 4 years PSA has been. 2 to .5 and they tell me not to worry?

oldtiffie
11-19-2014, 10:58 PM
Here is where it all started:
http://bbs.homeshopmachinist.net/threads/50766-OT-but-important-PC

Turns out it weren't so:
http://bbs.homeshopmachinist.net/threads/51314-Good-News!-They-Got-It-All

The Saga Continues:
http://bbs.homeshopmachinist.net/threads/52536-I-went-back-to-work-this-week

Fast forward to today, went back in for the routine PSA test.......
It went from 0.1 to 0.2 (best score for someone with my lack of equipment is <0.1) Kinda had suspicions that it could go this way when it went from <0.1 to 0.1.
Past the threshold now and now I will be starting radiation 5 days a week for 8 weeks. I will get more details next week when I go for the first consultation.

Side effects are purported to be mild. Proctitis, Urethuritis, Fatigue. We shall see.

too bad. I have been feeling really good lately, too.

Bad luck Weston - but its not really a problem as your Urologist seems to have had a CT scan and can reasonably say that the cancer is localised sufficiently such that the quite concentrated "radiation" beams can do the job.

As I understand it from my Radiation Oncologist and my Urologist that the CT can only pick up cancers that are 3>5mm in size such that any under that size are not "seen".

My cancer showed up at 0.10 PPM about 4 years after my prostate was removed and it started to increase quite quickly and exponentially from 0.1 to about 10.0 in a matter of a few months but my cancer was very aggressive at my biopsy.

The Urologist was more concerned about the rate of increase in PPM than the level of it. The straight line graph is pretty well OK if the straight line is at or close to horizontal but is of concern it is a high level of exponentially - which mine was.

My 5 days a week for 7 weeks radiation was quite OK as there were no side or after effects at all - just a slight "irritation" of the inside wall of my bladder. PSA was reduced to 0.10PPM - so it was still "there" albeit minimally.

My PSA returned in short order as another exponential plot - a steep one - so I was put on hormone therapy which soon brought the PSA back to 0.10PPM which continued as a low level slight potential increase.

My Urologist and Oncologist changed my Hormone medication from a 1 tablet a day regime to a slow release implant (injected) at 3-monthly intervals.

My PSA is now on a slow reduction each 3 months and which is continuing from a low level to a lower level approaching 0.10PPM. I have no side effects at all from it - and so I feel much better and more confident and at ease than I have before as regards the cancer.

It should be remembered that the PSA test result (in PPM) is a measure of the sum total of all the cancer in you body - so it could be a variety of sizes and numbers of individual cancers.

That you and I and others have had PSA's less then 0.10PPM does not or may not say that all cancer has been removed as it may increase to 0.10PPM (where it can be "seen" or identified) and perhaps increase from there over time.

Consequently it seems as I understand it that if your PSA is less than 0.10PPM for five years the (or more) the chances of it "coming back" are very much reduced towards but not necessarily at "zero". As I also understand it, this or similar does or may apply to other cancers.

Perhaps it may be more correct to say that the cancer may be in "remission" rather than "cured" if the PSA is below 0.01PPM for a designated period of time.

https://www.google.com.au/search?q=cancer+remission+defined&rls=com.microsoft:en-AU:IE-SearchBox&ie=UTF-8&oe=UTF-8&sourceid=ie7&rlz=1I7IRFC_enAU360&gfe_rd=cr&ei=wWJtVNjOBMnC8ge-04DgDg&gws_rd=ssl

Not so long ago - and some time after my prostate removal - I had an unconnected "blockage"/"collapse of the tubes from my kidneys (both) to my bladder which required a quite uncomfortable "opening up" of the tubes and insertion of two renal stents by my Urologist. These stents have to be replaced every 5 months under general anaesthetic (else that will/may "block" up "solid" and then I will have a REAL problem) but the up-side to it is that the Urologist checks my entire renal system (with an endoscope - aka "Look-up-a-scope") and also "dilates" my connection to the bladder if needed - and I seem him 3 weeks later after I've had a comprehensive set of blood tests (PSA included) every 5 months instead of every 12 months as if often the norm. So the PSA is going very well.

https://www.google.com.au/?gws_rd=ssl#q=endoscopy

Its odd how sometime a "bad" event seems to be for the "good" as well - as seems to be the case with me.

I wish you well and all that you and yours wish for you.

boslab
11-20-2014, 07:42 AM
My sympathies to all who have posted and have, are or for the rest of us god forbid, going to suffer this disease, a prayer is defiantly in order, I don't mind the grim reapers cold clammy finger on my shoulder but I really hope he isn't going to stick it up my arse first!
Good luck Weston
Thinking of you
Mark

ww_big_al
11-20-2014, 08:17 AM
Best of luck to. Every time I see this I can't help but wonder why they want to stop doing PSA testing. I know it isn't always reliable but it is the best tool we have right now to detect this. Hang in there.
Al

Weston Bye
11-20-2014, 08:22 AM
...but I really hope he isn't going to stick it up my arse first...

I thought I had gotten past that when I had the offending gland removed, but my internist insists on a DRE anyway, just in case. (??)


Sadly related, I was reviewing my health insurance. The company-provided plan, a "Cadillac Plan" as branded by the Obama Administration,has me paying about $2-grand toward the premiums. This is money up front, sick or not. Then, over and above the premium, I have to pay deductibles and co-pays to an out-of-pocket max of $6350. I have been healthy this year and have not satisfied any of the deductible.

I expect the radiation to burn through all that money in my wallet in the last month of this calendar year as it is burning through me and those little cancer buggers inside me.

Then Jan 1 rolls around and anothe six effing grand gets burrned up.

The cancer treatment phases
Cut it out - been there, done that
Burn it out - getting ready...
Starve it - no more testosterone for it - or me :( if it comes to that.
Poision it - ...

Thanks to all the good wishes and encouragement, and even Tiffies pedantics. By the way, Tiffie, what has been the time span for your adventure?

krutch
11-20-2014, 01:01 PM
Wish the best for ya Weston.
Remember what Doctors do is called a practice. My dad had problems about a year after retiring. None of the docs here, the University of Iowa City, or VA in Iowa City knew what the problem was. My doc here at home got him into Mayo's in Rochester Minn. for evaluation. The second day one of the docs said he knew what the problem was (neural muscular myopsy or some such thing) and dad was already pass the worse on the way to recovery. Said dad would be doing almost every thing he had before the symptoms showed with in a year. And he was able in that time.
Always get other opinions when the outlook seems bleak. Not every doc is the best person for a particular issue. They is only human after all.

Weston Bye
11-20-2014, 01:42 PM
Always get other opinions...

I have followed my situation very closely and done considerable research. It is evident with this disease that no two cases are alike, but the actual measureables and guidelines are clear in my case that the doctor is following best accepted practice. A second opinion would almost certainly confirm (at additional cost) what we already know.

oldtiffie
11-20-2014, 09:03 PM
I thought I had gotten past that when I had the offending gland removed, but my internist insists on a DRE anyway, just in case. (??)

My Urologist and Radiation Oncologist wanted the post-op DRE to see if they could feel any remaining cancers as they can just about feel the "pocket" that the prostate and any lymph glands were removed from.



Sadly related, I was reviewing my health insurance. The company-provided plan, a "Cadillac Plan" as branded by the Obama Administration,has me paying about $2-grand toward the premiums. This is money up front, sick or not. Then, over and above the premium, I have to pay deductibles and co-pays to an out-of-pocket max of $6350. I have been healthy this year and have not satisfied any of the deductible.

I expect the radiation to burn through all that money in my wallet in the last month of this calendar year as it is burning through me and those little cancer buggers inside me.

Then Jan 1 rolls around and anothe six effing grand gets burrned up.

The cancer treatment phases
Cut it out - been there, done that
Burn it out - getting ready...
Starve it - no more testosterone for it - or me :( if it comes to that.
Poision it - ...



Weston,

you will be pleased to know that as a veteran that all of my medical expenses are paid by our (Australian) Department of Veterans Affairs (DVA) at no cost to me for the rest of my life. I just show the provider my "Gold Card" and all that should happen happens - seamlessly - including my travelling expenses related to my medical condition/s when I go to see my Practioners/Specialists or go into hospital.

I pay no medical etc. insurance at all.

The service provided by our DVA is excellent in all respects - but I understand that it may not always be the case outside Australia.



Thanks to all the good wishes and encouragement, and even Tiffies pedantics. By the way, Tiffie, what has been the time span for your adventure?

I have been a patient of my Urologist for about 15 years after my Doctor saw blood in my urine sample - the Urologist had me in Day Theatre for a full endoscopy and all was OK - thankfully.

My biopsy formy prostate was taken about 10 years ago and from that result (aggressive) the removal of my prostate followed very soon after - and the re-appearance (ie 0.01PPM) of my PSA started about 4 years after my prostate was removed.

In the same time period I have had a hydrocele - which was at best "uncomfortable" - but it was a "Day Theatre" job with my Urologist.

https://www.google.com.au/?gws_rd=ssl#q=hydrocele

I also managed to get a heavy dose of renal infection which really knocked me about for a couple of months - pre and post op - as it looked like a renal failure but very good Doctors and the Urologist got it back under control - it took about 3 months to really get back under control otherwise it could mean a life-time of dialasys.

https://www.google.com.au/search?sourceid=navclient&aq=&oq=renal+infection&hl=en-GB&ie=UTF-8&rlz=1T4IRFC_enAU360AU360&q=renal+infection&gs_l=hp..0.0l5.0.0.0.12945...........0.tDfx9BYPz2g #hl=en-AU&q=dialysis

I've pondered including the next bit/"episode" in my postings related to hospitalisation and prostate cancer thus far as I was not sure it needed to be but as I've all but included "the lot" - here goes.

I was going very well indeed in my first two days of recovery from removal of my prostate when ""WHAM" - a "full on" very hard to treat "hospital infection" and down I went. It took another 9 days to get it under control and cured - I was monitored 24/7 and right next to the Nurses Station. I had leads and wires and endless drips as and blood tests as well as CT's and Ultra-sound scans - and medical people endlessly.

I could understand it if my wife thought I was having it "off" with the woman who took several blood samples a day as she seemed to have more to do with me that my wife did - but not so - of course.

It took several weeks at home to get over it.

Every one - all of them - my wife especially (as she always is) were absolutely wonderful through-out.

https://www.google.com.au/search?sourceid=navclient&aq=&oq=renal+infection&hl=en-GB&ie=UTF-8&rlz=1T4IRFC_enAU360AU360&q=renal+infection&gs_l=hp..0.0l5.0.0.0.12945...........0.tDfx9BYPz2g

So - I am in quite good shape in all respects - at last.

I hope this satisfies your very welcome enquiry.

oldtiffie
11-21-2014, 06:26 PM
I referred earlier to the support provided to Australian Veterans who have a Department of Veterans Affairs (DVA) "Gold Card" (which I have).

https://www.google.com.au/?gws_rd=ssl#q=dva+gold+card

I have my choice of Doctors and Private Hospital accommodation when needed - with no "Co-payments" or "out of pocket" expenses at all.

The providers bill DVA directly and I do not have to pay anything and then get reimbursed by DVA.

It sure is a big help0 now that my wife and I have retired.

It is not "means tested" either.

I will post how I see my wife ( a non-Veteran) and Weston are compared as I see it.

Weston Bye
11-21-2014, 07:21 PM
Tiffie,
I'm a veteran but I have always been able to pay my own insurance and pay my own way, leaving the overburdened Veterans Administration to care for other vets who may not be as fortunate as I have been. Besides, the VA docs has been somewhat variable in the quality of care. Sometimes better, sometimes worse.

My employer-provided health insurance took a big jump in cost when our government saw fit to look after our welfare. when I turned 62 I contemplated retirement and costed out a reasonable individual plan. I wish I had saved that document, but I remember it being profoundly less expensive than what I can purchase now at 64, even with the government prohibition against age and pre-existing condition discrimination.

Your 10 years of survival is encouraging to me. I wish you many more.

JRouche
11-21-2014, 07:52 PM
Hi Wes. It sounds like a traumatic situation. Cost and physically. I have some spare change and would love to donate 100 dollars to help out. PM me and I will send a check out to you. JR

Weston Bye
11-22-2014, 10:50 AM
JR,
The trauma, what little there is, is more psychological than anything else. I am in no pain and don't expect any from the radiation. Later on, toward the end of the treatment there might be some fatigue and maybe diarrhea, but these are usually manageable and recoverable.

Money really isn't an issue, my rant about insurance notwithstanding - that was just political carping. I know of others, less fortunate, that have been genuinely hurt by the new law.

To the rest of you reading this:
JRouche is a genuine stand-up guy and has followed up his post with the same offer in a PM. The offer has meant more to me than the money. I respectfully decline. Rather, Village Press is about to send my book, The Electromechanical Arts of Weston Bye, to press and it should be available in the first quarter of next year. I would encourage any of you who want to help me to buy the book. I will get a small royalty, but more important, the sales help support Village Press and this BBS, a place where friends gather. Some of the readers, anticipating the book, have contacted me about autographed copies. I am flattered and happy to do it.

George can fill in any details about publication of the book as he sees fit.

JRouche
11-22-2014, 09:07 PM
You bad man. I wrote the check out and just needed an address. LOL
Ok, I will, and encourage others, to buy the book, "The Electromechanical Arts of Weston Bye". I encourage our members to support other members and Village Press, mentally and financially.

This is the best, IMO, forum for like minded homeshop folks. Would not be possible without Village Press and the great contributors, such as Wes.

Id like to buy an autographed copy as well :) :) JR

oldtiffie
11-22-2014, 10:14 PM
Weston,

You should really have nothing or very little to be anxious about as regards the radiation treatment.

I was not concerned about mine at all as I had excellent beam Operators/Radiographers, Radiologist and Radiation Oncologist - as well as my Urologist - and all the reassurance they gave me happened just as they said it would.

The next thing to be concerned about - if you must be concerned at all - will be the post-radiation PSA reading - and see what is ahead of you from that point on - and not before.