PDA

View Full Version : OT - Diabetes



jfsmith
11-05-2004, 10:17 PM
We have heard what Thrud is going Through, I am a type II diabetic, I control my diabetes with pills, diet and exercise. My lady friend on the other hand in a Brittle Diabetic, that needs an insulin pump.

If you guys what to see an mazing thing, her insulin pump cost like $8,000, it has a 2 ml syringe and a AA battery, is as powerful as my PC and is as small as a pager.

Now here is the big problem with being a brittle diabetic, she has been in the hospital for 8 days now. The medical staff can't get her BG level below 350. I am not sure what that is in Canadian system. Plus she is producing Ketones.

They are talking pancreas transplant. If this had happen to this level 20 years ago, she would have died by now. That would be after she had goning blind, lossing the feeling in her hands and feet, had multiple seizure of various intensites. With some where in all of this a form of insanity that we don't hear about would have taken her mind. Along with very serious infections and many other problems. Death would have been a blessing then.


Instead she is reading the Hitchhikers Guide to the Galaxy while she is in the hospital, and having me visit twice a day, while the medical folks are trying to figure out what to do next.


I am not saying give to this or that to diabetes organization, just give your understanding. This can happen to any one and seems to be happening more and more these days.


Jerry

Tinker2
11-05-2004, 10:25 PM
Best of luck my friend, to both of you.

darryl
11-05-2004, 10:32 PM
A good friend of mine is diabetic, it rules his life. I only know part of what it must be like. Good luck.

PSD KEN
11-05-2004, 10:39 PM
My aunt was diabetic, lost both legs before she died.
Best of luck.

Forrest Addy
11-06-2004, 12:41 AM
I'm a diabetic since 1988. Mine is not severe. I controled it with pills until recently but went on insulin because of diabetic neuropathy. As of now my blood sugar is well controlled in the 80 to 120 ranges with after meal spikes to 180. It looks like I'm recovering some function and vitality and my A1c is down in the normal range.

Diabetes for you who've never been around it is a usually gentle disease involving no pain or discomfort but unless you control it sooner or later you lose feeling in your feet, suffer impotency, and then eysight and kidneys and if you're really unlucky, end stage diabetes is as miserable a fate as cancer.

You can diagnose it yourself if you pay attention to your health. Early stages are marked by mild unexplained weight loss, thirst and frequent urgent urination, blurry vision that roughly coincided with meal times, and loss of ambition and energy. Any of you middle aged guys experience these symptoms better check in with your doctor especially if you're sedentary in nature.

You can buy a bottle of pee strips at the pharmacy without a prescription. If you suspect, test. The directions are right on the package. Any sugar in the urine at all is reason to see the doctor. Take a bottle to the your Thanksgiving dinner and pass them out to the older farts for a test after dessert. There might be a few spilling sugar in their urine.

If diabetes is caught early, diet and exercise alone will often control it. Regular daily exercise is the most effective single control of early diabetes there is.

If you're a sugar junky (I am) stop. No, you can't cheat. Desserts and sweets except for small morsels once a day are off the diet forever because it will kill you by inches.

tattoomike68
11-06-2004, 01:22 AM
my woman is diabetic and we have both changed our diet, it has helped me from getting supper fat but im 6'3" 220 so i dont feel like a pig at 36 years old.

pasta, and bread are not good for her so we eat stuff like steak and eggs (low carb diet)

low blood suger will kill you big time, so will high but not as fast.

keep some candy around for emergencys, if my uncles old lady would have fed him a candy bar he would be alive today.

That one reasone I dont want government health care in the usa, the dmv and licence dept are a pack of jackoffs and dont want them messing with my health care.

On the brighter side I love to have an organic garden and spend time getting freash air growing good healthy food.
I can go out and munch on all kinds of good stuff.

after all the changes to my diet its all good to me, a good diet will make for a long life(and slip in some real food one in a while).

watch out for #1 and take care..

mike.

Rustystud
11-06-2004, 07:57 AM
Jerry:

I too am a type II diabetic I have had it for about 5 years and control it by diet and exercise. For the first 4 years I kept my blood sugars between 80 and 110 fasting and below 150 2 hours after meals. It has began to creap upward. I go to a endocrinologist every 3 months. I also have had my thyroid removed due to multi nodular goiters (differentiated)and growing. My brother had thyroid cancer and my was still growing even after suppressive theraphy. I have had to deal with two different endocrine problems simultaniously. I can relate and my thoughts and prayers are both with you, your girlfriend and Dave. I know what my prognosis is and think about it every day.
Rustystud

Al Messer
11-06-2004, 10:00 AM
May I suggest to you Type II's that you buy the book "The Sugar Busters Diet Plan" and go strictly by it? I have been a Type II for about 4 years and right from the get go, my doctor put me on this diet. It seems that us folk that had European ancestors do not handle foods that were discovered in the Western Hemisphere such as Corn and White Potatos. Our systems can better handle whole grains such as Barley, Oats, and Wheat. I have learned to really enjoy this diet and scope out the foods eaten by my ancestors and try to eat accordingly. As a result, I have lost around 30 un-needed pounds, my Blood Sugar is under control with a minimum of medication and I really do not miss the "sweets".

Wayne02
11-06-2004, 02:46 PM
Type II diabetic here as well. Just got back from my annual physical, and my hba1c is up from 5.5 to 6.8 from a year ago. Previous 2 years hba1c was 5.3 - 5.5.

I can make all kinds of excuses, but the cold hard reality is it is my own doing. Over the past year, and in particular the last 6 months, I've fallen off the exercise and nutrition band wagon big time.

Used to go to the gym 4 days a week, now down to 2 days a week, maybe 3 weeks out of the month. The carbs are what just kills my blood sugar. The breads, pasta, and potatoes are absolute evil. Direct sugar intake doesn't seem to affect it much, but those carbs are sustained release killers.

I'm supposed to be eating 5-6 "small" meals a day. I find this incredibly hard to do. I find it a huge productivity waster. Stopping every 3 hours or so to eat is pia. So, naturally what happens, is that I go for hours between meals, and end up very hungry. Too which I respond by eating big meals of the exactly the wrong food at the wrong time (after 7 at night). It's a vicious cycle that is hard to break. It doesn't help matters that I absolutely hate to cook. I need to get back on the wagon.

Best of luck to you and your lady friend jfsmith.

Wayne

Evan
11-06-2004, 03:45 PM
I'm not diabetic but have a similar hidden condition. I am gluten intolerant, also known as celiac disease. My gut is missing an enzyme to break down the gluten proteins found in wheat, rye, barley and oats. Corn and rice gluten are ok. I can't tolerate so much as a single bread crumb. I have become an expert on reading ingredient labels. There is gluten in all kinds of food that you would never expect to contain it. Everything from steak spice to soy sauce to candy bars. Never mind all the food made from wheat. Wheat flour is used in many things as a thickening agent. One major source is called HVP, or hydrolyzed vegetable protein. It's everywhere and is often found in dishes that would seem safe, like flavored rice.

I have to avoid it entirely. This isn't a diet you can cheat on at all, not even a tiny bit. One crumb in my food and I am sick for a week, like having the flu combined with food poisoning. Also, if you say to hell with it and do cheat it really ups the cancer risk. It also tends to bring on early arthritis, which I have. I really have to be careful not to drop things as my fingers don't always work that well. There is no treatment at all except avoiding gluten in your diet. I know of no stricter diet that eliminates a wider range of foods. If you don't stick to it it will eventually kill you as you completely lose the ability to digest food. They were wrong when they taught me that grains are an essential food group. They aren't. I've been on a gluten free diet for 18 years. I sure miss beer, sniff, sniff.

But, I woke up again this morning and that sure beats the alternative.

jfsmith
11-06-2004, 08:03 PM
Evan and all,

My lady friend is very happy to open her eyes in the morning, afternoon and evening.
She said all of the books for controlling diabetes, should be eaten not read.

Jerry

spope14
11-06-2004, 08:40 PM
jf, my prayers, and my families prayers are with you at this time, and for the time to come. I have been through some of this, and hope for the best for you and your wife. The pumps are indeed amazing, and with the transplant possibility, my prayers are for you an the other in this "balanced" situation.

My wife is diabetic, has been since she was 15 years old, and is now 50 years old Monday. Type 1 I believe, insulin dependent, Lantas and H as i recall. Four shots a day, four to six tests a day, several small meals a day, and tests before she eats anything.

Her first diabetic doctor was Dr. Joslin of the Boston Joslin Diabetic clinic. She had a first pregnancy that went real bad, but I have a beautiful daughter as a result, though she spent ten weeks in the hospital, and delivered hard. I was not married to her than, and her first hubby was a true jerk who blamed her for her condition. The second child, ten years and four months later, picture perfect pregnancy, but alas, our last. This was our "second child", though our first as a married couple. More later.

The first secret here has been making this a family endeavour. I like to say WE have diabetes. My older daughter now 24 with a child of 2, and my youngest at 13, my bride, and myself. We never discount the condition, we are always aware, we all test together, though it is her that is tested. We share all the graphing of the "sugars". We talk about it regularly, and we all know the drill for high and low sugars. We also counsel other families with children who are new diagnosed, and also counsel older people new to type one. With all of this said and done, we also do NOT let it rule our quality of life. The secret is control and awareness by all of us.

The second secret is also our friends, who know what we have going here, and rather that shying away from us, they embrace us, and my wife, and are more than willing to help when needed.

An example of the help comes this past Thursday evening. My wife and I at a gathering, my wife goes low sugar while I am elsewhere, our dear friends help her out - without question, it just happens, no real issue. My wife is well known in the city, as am I, and being such, this is just "one of those things". My wifes co-workers know of her condition. She told them this right up front in the interviews, and come to find out, her bosses hubby is diabetic type 1, so she looks after my wife. The second secret again, an perhaps greater than our family awareness to this is great friends, being open the them, and accepting their help. Our friends have become closer and dearer to us as a result.

The third secret is health care. My wife is 50. Lord willing, and i say sadly, I will probably survive my wife due to this, but we are sure intent on making this not true with old age as a goal. My wife has the best care, and has had thus since her youth. Dr. Joslin was a pioneer in the field of juvenile diabetes, an my wife was one of his personal patients. My wife has been passed on to other new pioneers in the field at Dartmouth Hitchcock. Our health insurance considers her a very low risk, and in fact has authorized otherwise experimental treatments for her because of her history, and her experience. She is a well known patient for Drs. to study due to her history of being a pioneer in her own right in the field. I brag on her because I am so proud of her, so I ask your indulgence. She also realizes this, and carries on the word to all who ask or need this, and willingly takes a few isks at times for these pioneers because she feels that the things and life given to her to this time are Gods way of telling her to pass it on.

And our youngest, this was not supposed to happen. However, under a huge ammount of guidance (all but there you dirty minded folks), WE had pregnancy that was written in the New England Journal of Medicine, which was a ten years later follow-up to her first write up in the NEJM about her immense difficulties in the first one.

My final secret. Our graphing of sugar levels over th fifteen years of marriage, and I do not underestimate the graphing as a need to do... Our graphing puts her body having low sugars at 1:30 a.m., 6:00 a.m. and 5:15 p.m.. If they are to happen, they will happen right around then unless some other factors are involved. Due to this, WE have a family habit, which has now lead to a bit of a small pot belly on me. I used to try to dink water at 10:00 p.m. before bed to "have to get up in the night" to well, you know. Worked about 50% of the time. I now have a single beer nightly at 9:30p.m. each night, or before bed if the time is later. Yah, like I need n excuse to drink beer. the secret is this. I have to get up at 1:30 each night to...well...you know, and I do a quick test for low sugar on the bride, she does not even wake up now for the blood test. If low, I go make her the required snack, stay up an hour, test again after she eats (and I eat too, yup, like I need an excuse to eat), then back to sleep.

I have rambled here, but I am aware of what THRUD is going through first hand in many ways. My wife just had the very first signs of that eye trouble, but caught early. She has probably ten years of sight or more due to this (health care being the key). We hav our scares no doubt, and realize th mortality of it all, but do not let it rule us. My wife has lived beyond the expectations she was given in 1970, and will live for years to come god willing. I say this because she feels this way...God willing. We share this as a family, our friends, acquaintances, and even our community willingly share this with her, and through this she helps others because she, and our family feel this is the calling and grace she has been given.

Thrud know of this in general, and Dave is in my prayers, and our families prayers nightly.

Thank you for your indulgence. JF, please keep us informed. My wife is in Florida right now, but I e-mailed her your note for our prayers.


[This message has been edited by spope14 (edited 11-06-2004).]

Forrest Addy
11-06-2004, 09:23 PM
If I was going to point to a guy that stuck to letter and spirit of "in sickness or in health, for better or for worse" part of the wedding vows, Snope would be it.

That's a great passage Mr Snope. Stand by your woman aint just a hook to a country song. It's what makes the human race vigorous and strong.

Evan
11-06-2004, 09:28 PM
I'll second that. My wife is a great help to me in looking after my diet. I am 6' 2" and was down to 130 lbs in 1985. I ended up in the hospital, couldn't even stand. With her help I now weigh 188 and am healthy.

charlie coghill
11-06-2004, 09:56 PM
Thanks All;
I appreciated reading all the post. Of 9 kids in my fathers family only one has not developed diabetes.
As for my self I am over weight and still like the sugar and chacolate.
At this time (64years)I or my brother have not developed any of the symptom that have been mentioned. Here is hoping.
Years ago I had a friend that had juv. dibetes. He is not longer with us, but befor he passed away he had lost limbs and his eye sight. This sutff is nasty.
Charlie

jfsmith
11-07-2004, 11:16 AM
We do this as a part of family, Amy is still in the hospital and of course they are trying a new line of treatment of her diabetes. The IV pumps in the hospitals are very crude compared to an insulin pump, so they are trying the old fashion test and treat methods, which didn't work in The past and haven't worked in the last couple of years.

Her blood Glucose levels have stayed above 300 for the last two weeks and neuropathy will start soon. Neuropathy can start small and take years to advance, but if you prevent it, you are better off. If a persons blood glucose stays hi, everything from brain problems to vision, to bladder to limbs can easily get started.

If you folks want to have some real control over what happens to your spouses or other halves, get a Durable Power of Attorney with them. Hospitals really take note of those and you don't have to stick to visiting hours.


Jerry

Evan
11-07-2004, 02:56 PM
My wife and I have had a laywer drawn power of attorney in the safe deposit box for 30 years. We trust each other, completely and absolutely. We have no secrets.

spope14
11-07-2004, 07:44 PM
Heck, on our first date, the then future "wife of wives" and I double dated with another couple whom set-us -up. I should have known to run, but alas, being young, naive, and a Westerner in New England far far from home...but I digress.

The future bride had a diabetic reaction, seems she was so nervous for the date (we had met before) she forgot to eat all day.

Good thing for friends, they saved our tails.

So bottom line, this knowledge and agreement has been right with us from hour #1.

On the flip side, she now has to put up with my slight beer belly, my occassional smelling of coolant and oil.

We use massage techniques to keep circulation in the hands and feet. Four to seven times a week. We have made advancements in the last year using these techniques. Her feet and lower legs were in a bit of trouble two years back, now looking much better. Besides, I now have the strongest hands and arms in the city now, and am back to limbing 5.11 for any climbrs out there........Guess the bennies work two ways.

We realize the odds, but will do what we can while we can to cheat them.

[This message has been edited by spope14 (edited 11-07-2004).]

spope14
11-07-2004, 07:47 PM
I post this seperately for the message at hand...JF, are you working with your family physician or a diabetic specialist?

My ife had a bit of this problem a few years back, the end result was a new type of insulin called Lantas, which time releases. My bride also tried the pump, but for now, constant control is her best bet.

Prayers from both of us to you and yours.

mbensema
11-07-2004, 09:55 PM
I have been diabetic for 3 years and found bitter melon works for keeping the blood sugars low. The actual fruit or vegtable or whatever it is tastes like crap, but bitter melon pills are available. The doctor rolled her eyes when I mentioned it, but my sugars have been about 15-20 points lower when taking the pills each day.

jfsmith
11-08-2004, 01:09 AM
Scope,
Amy is working with an endocrinologist, family doctors don't want to touch her for anythings. This doctor is bright, cares, gave her his home phone number, and really doesn't care that much about payment, so long as she stays alive.

Any out there got any real iron? I need some and soon Amy will need from things made from that iron for here next big project, helping to preserves the industrial heritage of America. She will be building what looks like oversized books for a museum, that will contain pictures and tools, along with other stuff.

Amy may be down at this minute, but she is planning her next project.

Jerry

Evan
11-08-2004, 02:18 AM
Good luck and good health to you and yours Jerry. I know how it feels and goes.

farmwrench
11-09-2004, 11:05 AM
Grampa had it for 20 years and died of a silent heart attack. Dad was diagnosed the next week. I have been tested a few times but know I will get it. Almost every potato farmer I know over 40 has it (almost all slim to start with) None of us wheigh over 220 and stand 6'2"plus, very active I handle 5-10 tons for potatoes in bags a day. I saved cord blood from my little girl. hope something will be found.

Thrud
11-11-2004, 02:45 AM
I am a type 2 diabetic with a catch - my body produces insulin when it feel like it. This causes problems when I keep my blood sugars close to the ideal 4.0-7.0 mmol/L. I have been in metabolic classes with my endocrinologist and had 7.0 blood sugars one minute and crash down to 1.0 two minutes later. This happens way to often and because of it I have to carry emergency injections to stabilize it.

I have been having trouble with my kidneys as some of you know, I found out today that there is minor damge from the diabetes (far less than expected) but what they did not expect is my kidneys are acting as if they are responding to an immune deficiency related desease and they can't figure out what in hell is going on. Plus the red blood spot are back - I look like I have been spray painted red. That and I feel like **** - this is the worst birthday yet. http://bbs.homeshopmachinist.net//eek.gif (Did I mention I kissed a yellow parking post with the side of my black truck - colour me "doofus" http://bbs.homeshopmachinist.net//biggrin.gif )

[This message has been edited by Thrud (edited 11-11-2004).]